Family Gene Toolkit
Development and Testing of a Family-Based, Web-Based Intervention for BRCA1 and BRCA2 Mutation Carriers and Their High-Risk Female Relatives
Maria C. Katapodi
Laurel L. Northouse, Sofia D. Merajver, Kara J. Milliron, David L. Ronis, Kari Mendelsohn-Victor
University of Michigan School of Nursing, University of Michigan School of Medicine, University of Michigan Comprehensive Cancer Center
2012 bis 2015
The family-based intervention for mutation carriers and their high-risk female relatives aims to increase: 1) knowledge of breast cancer genetics; 2) informed decision-making about genetic testing; 3) active coping about hereditary cancer risk; and 4) family communication about genetic test results. Focus groups with mutation carriers and their high-risk relatives (N= 12 individuals) helped refine the content of the intervention and determine mode of delivery and dose (i.e., number of sessions). The effects of this family-based intervention are tested with a new sample of mutation carriers and their high-risk relatives (N= 64 mutation carrier-relative dyads) using pre-intervention (T0) and post-intervention (T1) assessments.